Need prayers

[angels_among_us]

Some of you that are either Facebook friends with me or know me on the Playa form know already but those that dont.. I have a extremely rare cancer like disease that is uncureable and I've been fighting it for the past 7 months. I actully got sick the day before we headed to Playa ( and Cancun) and was sick the whole trip, came home and went to the ER twice then went to my Dr's when she opened and I don't remember much more. She called 911 and I was taken in a ambulance to the hosptial and admitted where I had a biopsy on my lungs and while I was under they used a camera to see what was wrong with my heart ( which also came up in test).

I have LCH there is no cure. I did one round of 168 hours of chemo and looking at more soon. I am on a lot of meds and have lost 15.8% of my weight ( over 55 pounds). But hey I am not overweight anymore. I would not recomand this diet to anyone though LOL I went from over 220 pounds to 160's with I bet 30 plus Pounds on top LOL Wish I could lose THAT ROFL! well Ok not all it but some it!

.I am unable to eat more then 8 or so bites a day ( which is GREAT) as two weeks ago I was eatting 4 or so bites for last almsot 7 months. I hurt every inch of me and there is something wrong with my stomach. Were not sure if it's the LCH or if its Endo Or if its a Ulcer we just don't know but I get admitted today and put under for a biopsy on my stomach. Unfortunally LCH ( the Rare disease ) does not always show up on a biopsy. Less then 3000 have ever had this disease and most are small children.

We have went to Mayo and I get treatment at home with what seems like 10000 Dr's ( ok ok It's Home Care, A oncolgist, A lung Dr, A internal health Dr , PT at Home etc etc) but it seems like so much more as I'm always at the Dr or always have someone in my home treating me.

I don't know why I've not shared here. I know my husband did make Steve aware since were buddies but I guess I just feel so wore out. I do keep my friends up to date on my facebook and on playa forum but I feel bad that I've not posted here . shame on me!


It's scary some days I do Ok as in I can get out of bed and maybe go to a store and shop for 10 minutes. Some days I can take a hour car drive ( as we did this week to see the lights) but I don't have to physically do anything but sit in the car . We did manage the movies also ( a big step!) but again physically I just had to sit up which is a big task at times.

I don't remember much of the vacation unfortunally. I do love looking at the pics the kids took! Who knew buying 5 children nice digital cameras would come in handy ! ( That was their surprise for Vacation). I don't know how I manage some days being a mom of six but we do manage every day. I was on the news the day before Thanksgiving and again a week or so ago. The disease is just so rare and with no cure were trying to get the word out. I WANT TO LIVE A LONG LIFE. WE NEED TO FIND A CURE. WE may look into doing a stem cells transplant but were not sure if I'd be able to manage it. We are looking into it though. It would be VERY risky. Heck getting a cold is risky right now. I guess I am rambling on. I just want prayers please. Prayers that today goes ok. Although a Stomach biposy does not seem like a big deal to some it is for me expecially being put all the way under with my lungs the way they are right now. It is also in my lymp nodes under my arms ( it was the size of a golf ball) However the Chemo Shrunk them! YAY!. I know not everyone believes in God and I'm totally Ok with that so those that don't if you could just give us good thoughts I'd appericate it. Those that believe in prayers I'd apperciate that! We did do a healing service at my church I guess 8 or so days ago. Still waiting for that Miracle.


Thanks in Advance

Trina

[twinimini]

Trina, we have never met, but your story touched me so. We wish you the best and so admire your sense of humor in the face of adversity. You are a very courageous soul and our thoughts and prayers are with you.

Hang tough, you have many friends and admirers you have never met.

[rdubnpk]

rdubnpk
We are so sorry to hear about your illness. This is the time of year for miracles and we are hoping for one for you!!!

[suedave]

Although we have never met, we will keep you in our thoughts and prayers, keep positive and strong. Thinking of you and your family. xxx

Sue and Dave

[trychaser]

we have never met you either, but your post had us both in tears. My mum has incurable lupus which is radically impacting on her lifespan and quality of life, but your condition sounds truly awful. Although we are not prayer type people please do know that we wish you all the very best and you are in our hearts and thoughts. The Temptation community (we are finding) is a wonderful friendly support group in every way. Take care Tony and Deb

[jeff & deb]

Though we have never met, I've read your previous posts and I am aware of who you are. I'm so sorry to hear that you are having such a tough time of it, you and your family.
Please know that I'm thinking of you and praying that all will go well for you and yours.
Keep us posted on how your doing.

[Steve]

Wishing you all the very best Catrina, also to Skip and the kids too. If there's one thing I do know of you it's that you are a fighter and you wont let this thing beat you without one hell of a fight.

We really enjoyed the day we met up with you and your family last summer in Cancun and hope we have the chance to do it again some day.

[calcpl]

Good thoughts coming your way. Stay strong.

[Meims]

May we send our healing wishes to you, I know that we have never met but you sound like an amazing woman, you will be included in our prayers. Jackie and Jim

[dmac]

Our thoughts and prayers are with you and especially those children. Keep up the fight and hold on to that positive attitude.

Dale and Cherri

[chris-n-allison]

We have not met, but I just want to let you know that prayers are being lifted for you and your family. Stay strong while He has you on this journey, knowing that there is a purpose although you may never know exactly what it is. I'm sure your post has touched more lives more than you know. Keep your sense of humor & keep us updated!

[jws]

Praying for you, sister! Stay strong!

[rieldeal]

On the night of the Lords birth, I will pray for you and I'm sure many more of us will, stay strong, I'm still here thru all the prayers said for me. All the love Norm.

[NTBABY]

Our prayers are with you & your family. God Bless

Scott & Lori

[AW]

Thoughts and prayers sent your way as of this morning.

[Michael F.]

Trina, am sorry to read about your situation. I do hope and pray this will be overcome and you will continue to live a long life with the love of your friends and family.

[jeff & deb]

Just been thinking about you wondering how things are going, hope all is well.
Just know that many of us out here are thinking about you.
Stay strong girl.

[glenn/monique]

So sorry to hear about your illness. God Bless.

[angels_among_us]

SH*T! I just posted a long azz post and it all disappeared!!!

I want to thank everyone for the continued prayers and good thoughts. I apperciate them more then words express. I've had a lot going on this past 30 days ( yes more then just being sick). My mom passed away and while we was not close it still hurt and hit me very hard. We have requested that my oncolgist appointment be put off for a couple weeks as physically and emoctionally I just had to much going on and needed a longer break, my oncolgist understood and thought it would be a good idea if I took a bit more of a break and was a bit stronger emoctionally when we went in to talk about if were going to do more Chemo or what treatment were going to do. If I do Chemo again I'll have to have a PICC line put back in and I'll do 168 hours back to back (24/7) at home via the picc line straight into my blood stream. so I need to be able to handle this emoctionally .

I did do ok with going under and having the samples taken of my upper stomach although when I woke up I had a bit of a break emoctionally.It seems I don't have LCH in my stomach HOWEVER it is effecting that area and my upper stomach is swollen which is making it where I can't eat very well or much at a time. I am happy that one of the meds I am on is STOPPING my weight loss from being so fast, I've only lost one pound this week. I am up to 60 so pounds lost now. Now I am glad I lost the weight I am not ashamed to admit I was a big woman before I got sick that struggled with her weight and losing and keeping it off. We did find out this was due to meds I was on . Now if I could lose some damn boobies I'm like Dolly there! All you that think that is a blessing please sign up and take some of them damn things from me! I'll donate them to you for the small cost of a trip to Cancun Ok Ok I'll donate them free of charge after all that's what donate means.

Those of you that have known me since I joined Cancuncare what seems like forever ago will remember I've struggled with alot of health issues and have some pretty big surgeries, which always came out of the blue. We did find out this was LCH all this time and not other things they thought it was. It is often thought to be other health problems. The Dr's at Mayo was able to get films and samples all the way back from 2007 and compare and to LCH and found out it has been LCH all this time. It is just so rare that most Dr's have never even heard of LCH more less know what it is or what to look for. Thankfully we know now so we can try to treat it even thought that's all iffy and they really don't know exactly what works and don't work. I love ALL my Dr's *well ok I like some more then others* and I know they are all doing the very best.

I will keep you updated my next oncolgist appointment it's not this coming Monday but the one after and we will at this time speak about if we want to do another round of Chemo or go another way with Treatment. It just depends on if it's spreading, staying where it is or getting better with Chemo. I am very lucky and I've not lost all my hair but it has thinned out a GREAT deal, I lose about a hair brush full each day . My husband did force me out of bed the day my mom passed away and into the Salon so we got a lot cut off and I think this has helped my self esteem a great deal. I was really upset when he pushed me out of the house but it did stop me from crying and it has brung my self esteem back, I just don't seem to notice the hair lost as much now that I've got some cut off. We put a bit of color on it also. What? I'm going to damage it? LOL!! Shoot I could go purple or pink or a new color every two weeks and it wouldn't matter rofl!

I have got out of the house and went the movies once and even went shopping with the children and hubby a couple days after Christmas. Wish I would of minded my PT and Dr's and used the wheelchair but I get sick of the judgement and the looks I get. I want to run them down with the wheelchair! I need to get a shirt that say's I'm sorry I have cancer , whats your excuse for being a D*ck!?

Although I did need to lose weight ( and I still need to lose more just not THIS WAY and although my Dr's say I don't need to lose anymore) I'm happy I've lost some weight just NOT THIS WAY it's been hell on earth losing weight this way. I don't even come out of my room when the family eats as I know I'm unable to eat much and most times nothing at all when the family eats. Anyways thought you guys may like to see before and after pics. I'll post some from Cancun ( This is when I first got sick this go around) and then some recent ones . Steve since you have seen me a couple times in person your notice it more then others .NOW someone tell me how to lose these damn boobs and I'll be good to go
Pics from this summer first , Sorry not many of them as I was so sick I was in the hotel room most of the trip.


Ok at one time everyone say Good bye ugly damn double chin Ok Ok it's still hanging around a bit LOL



Shoot ok gonna need to post pics in another post .

[angels_among_us]

Ok I know! What was I thinking? This dress is fugly! LOL


I got a cute family hu? I am so blessed!! love them so much! I get up everyday and fight this for THEM!



In playa the day we was heading to home ( I mean Cancun!)



yay were in Cancun baby!



and now recent pics

[angels_among_us]

Oh and for heavens sake don't say Ohh but you didn't need to lose weight I did (and do) have a mirror and a scale LOL Ok here is pics from when I first got sick and the last pics will be from last 2 weeks.

Aug . This outfit falls off of me now like a hooker trying to make a fast buck.

October ish at Chemo station


I miss my hair!!






LOVE this pic as I am rolling my eyes ROFL can you tell how I was feeling that day?? hahah!




and because I love this night gown LOL ( althought it does not fit any longer well the bottoms don't) Crappy pic taken with cell

[angels_among_us]

Ok a few more and then I'm done. Sorry can you tell i'm up late and can't sleep? I'm so bored!

Most of these are with no make up don't judge lol , Due to a Rash I had got with LCH I had to throw away my make up collection * OUCH!* and start with a new collection I am still building and have to use a new tool each time I put make up on now. I recently won a Airbrush make up kit and should be getting that in anyday!! I Can't wait to use it YAY! It will make things so much more easy as it's not touching my face ( with a brush or anything) . I won it on a facebook contest YAY YAY!

My Uncle Tom (family of choice) got me this outfit for my birthday in Nov. Again crappy pic was taken with Cell so I could text him the pic of me in it. Dude see I need to lose some boobs they even was hiding my picc line in my arm! HA




Incase your wondering here is where my PICC Line was. I was able to hide it good from the camera by the way I would stand or the shirts I wore. I had it in for months and had it taken out after I got the Chemo taken out for my Chemo Break. I'll get another put in if I do another go at Chemo, and again have it taken out in between rounds due to risk of infection.


Couple weeks ago before going in to have the samples taken out.



yay shopping right after Christmas with kids .




New hair! sorry cell pic! LOL There is that stupid double chin LOL





and last me and my niece which was 2 or so weeks ago Aint she adorable?! LOL sorry for sharing so much but I'm bored and was looking over the pics on facebook and man have I changed in the last 6 or 7 months. Now remember just because you see someone in a wheelchair that looks young and may have their hair and make up done etc does not mean they are "OK" or don't have a need for the wheelchair . I struggle a great deal to get out of bed and shopping or getting out of the house is very hard for me. I can do about 15 minutes now ( so 5 more since last post) and then I am wore out and in bed for a day or two. When we went shopping with the kids after Christmas I was in bed for days in so much pain even the morphine didn't touch it and I'm on 2 different kinds! OHH I get so tired of hearing you must be feeling great , when I do my hair and make up LOL Sorry for misspellings I seem to have brain farts these days and I tend to misspell a lot more. Sorry again if I over shared LOL HUGS! and TY for the prayers and good thoughts!! Miss you Steve and family! hope to see you again once I beat the crap out of this and recover a bit. I know they say it's incureable but that does not mean I won't get where I'm feeling a bit more normal again. I have faith!

[angels_among_us]

roflmao!!! the advertisment under my last post says.......... Need to lose 30 LBS? Try Sensa Free! HAAHA your site is trying to tell me something Steve ROFL!! HAHAHA OK going to try to rest now ROFL LOL!!

[dmac]

Thank you so much for sharing. You are still in our thoughts and prayers. There is no reason to ever apologize for sharing your thoughts. We are all honored to listen to your story. You are an inspiration for the rest of use. Your outlook on life and your bravery are awesome. Please tell those children we are thinking of them also. The pictures were great. Keep us posted.

Dale and Cherri

[twinimini]

We also thank you for sharing. Keep plugging and you will stay in our thoughts and prayers. And, yes, you do have a very cute family!

[jeff & deb]

Thank you for taking the time to let us know how your doing. I think about you often and hoping for the best. And yes you have a beautiful family. Stay strong, you've had to deal with so much its about time things start going your way.

[mikel]

Thanks for sharing, I feel honored to have met years ago and I hope a miracle comes your way

[Meims]

I can understand the fight that you are putting up for your children, what a lovely kids you have, and so many of them! We will keep praying for you and your family, so sorry to hear about your loss. Jackie and Jim

[DConCT]

Keep up the good fight, Catrina! Wishing nothing but the best for you and your lovely family!

[R.I. GAL]

Great pictures of you and your beautiful family.

I am so sorry to hear you have been sick! I will be keeping you in my thoughts.

Please keep us updated.